Surgery rescheduled till Spring. Stinking cold.

Hayden developed a cold Sunday night and Monday, still coughing today so we decided to reschedule his surgery until the Spring some time. Stinking germs. :(

Next step a January Cardiology visit and than to reschedule his surgery once the fall/winter germs get cleared up a bit. (Sure Ali will post other stuff, but thats for that for now.

Oh well back to living a normal life again for a few more months.
At least we got to Vote early. Guess we have to buy some Halloween candy now.

Surgery Scheduled

Hayden's surgery is scheduled for 10/27, with a pre-op on 10/24. EEK!!! That is SO soon. I am making mad lists (as I do). Lists for home, lists for school, cancelling things, rescheduling things, worried about not being able to vote, holding the mail,etc. Planning, planning, planning. Generally speaking, I am spinning in circles at record breaking speed.
All that aside, we are glad to get a date so soon. Attempting to stay away from all winter hospital illnesses.
Off to spin some more;-)
Ali-

Why I love Hayden

I tell Hayden that I love him at least one hundred times a day. He often replies with, "I love you too, Mom." Lately, he has also taken to replying with,"Why?" I usually give him one or two reasons before he loses interest in that conversation and starts another. I thought I'd keep a list of my reasons.
I love Hayden because: he can always make me smile, he is strong, he is sassy, he is smart, he is creative, he likes to sing loudly even if he doesn't know the words, he likes to wear a chef's hat and apron while cooking with me, he tells jokes and laughs by saying HA!HA! at his own punch line, he vacums after eating a snack or dinner, he asks for kisses when his mouth is covered in leftover chocolate, he thinks he is an olympic swimmer in the bathtub, he cheers just like his Dad ( sans cursing) for the Redskins and all things Terp, he knows what a shopping kiss is and gives me one everytime we shop together, he can bust a rhyme, he sometimes keeps money in his sock (while it is on his foot), every night he looks for the moon and stars, he thinks I am pretty and tells me so, he likes to play with my hair, he loves to have picnics in our family room, he says " I don't think so" in a sing songy voice when asked to do something he doesn't want to do, he repeatedly asks me why I am so short, he thinks he is tall, he is silly, he loves music and dancing, he loves to read books, he is a fighter, he can give himself his own meds., he loves spicy food and often smells of garlic, his is more talkative than I am, he loves to snuggle before bed, his favorite animal is a zebra, he enjoys practicing yoga but yells Namaste like a ninja, he is sweet and loving, he once rubbed my back while I was throwing up, his is one of my boys, he likes lisening to BNL/Bee Gee's/Simon and Garfunkle, he is intuitive and tough, he is my little love.
Ali :-)

Get to talk to Surgeon and set a date

On Monday the 13th, we are heading down to Hopkins to meet with Dr. Cameron to review the Cath. results and talk about Hayden's surgery and hopefully come up with a time frame for his surgery.

Even though his name is Duke Cameron (Us being Terps fan all these years, had to bite my tongue the first few times we meet him ;)) , he is freaking amazing. Feel smarter and more amazed every time we talk with him.

till next time,
Rob

Hayden is a candidate

Just got off the phone with Hopkins, they say Hayden is a candidate for the Fontan (3rd stage surgery). Will have some modifications, but this is still really great news. We are relieved and scared. Will find out a date for when exactly in the next week or so.

Can't wait for this stuff to be done already.

Hayden did an amazing job with his catherterization. He said, " When is it my turn? I am so excited to get my heart checked." His ability to bounce back from adversity is unbelievable. No adult I know would have taken it so well.
He got a Leapster for being such a good boy!