I love odd numbers. No, even numbers are unlucky. Ok, they freak me out. I know, I know, this is a bit Meshugenah, but it works for me. I require an odd number of kisses from my boys. Same for hugs. M & M's. You get the idea.Thirteen is my lucky number. But , just for this week, I am so digging the number "two".
This Wednesday marks two years since Hayden's most recent surgery, The Fontan. It was quite a rough experience ( feel free to read posts from March and April 2009). Oddly( pun intended), I am feeling a bit emotional this week. Not pull over on the side of the road and meltdown emotional, but emotional, nonetheless. I keep recalling some really horrific moments, but can only seem to see the good in them. The amazing medical staff that helped us fight for Hayden keep popping into my mind. Moments when Hayden accomplished things for the first time seem to win out over watching him gasp for air. I am feeling appreciative of how far he has come in two years and that we have had these two years. Also appreciating that those two years are behind us.
In order to properly honor the two years, I am ( gulp) going to focus on the frighteningly even number "two" and the things I appreciate, in pairs.
1. Two Cardiology check ups a year. ( WOOHOO!)
2. Two visits to the PICU this year. One to drop off Hayden's B-day gifts ( he donated them to kids who were inpatient) . One to bring treats to the PICU staff. Both social calls.
3.Two INR checks a month...most months.
4.Two upcoming airplane trips for Hayden. His first:-)
5. Two weeks at the beach. Hayden's idea...I didn't need any arm twisting.
6. Two (x3) Annual Hayden's Heart Heroes Golf Tournament- Fri. June 24, 2011 ( I know, I cheated. 6th annual)
7.Two TV appearances for our family.
8.Two Lazorchak's participating in the B-more ten miler. Me- 10 miles. Hayden- kids fun run- his very first ( Rob has many other races scheduled, too.).
9.Two boys swimming each week. Loved seeing them in the pool at the same time.
10. Two (to four) hours a day after school with just Hayden.
11.Two parents. My Mom and Dad Rock.
12. Two more parents.Rob's Mom and Dad Rock.
13. Two, more, more parents. Lynn and Dave Rock.
14.Too many friends to name who love and support us as well as our fundraising efforts. Y'all now who you are. It has been a great two years to share in so many good times together.
15. Two wild and crazy fools. Uncle Robot-Chicken and Aunt Jenn.
16. Two sets of Lazorchak Aunts, Uncles and cousins.
17. Two days of every week to spend with my favorite two people in the world.
18.Too many medical staff to name. You amaze me with the work you do, daily. Your guidance and support and frienship has always been so meaningful to us.
19.Two halves of a career. And one half is over!!! ( OK, that one was all about me...but, you know.)
20.Two minutes it takes Hayden and I to walk home from the bus stop. So happy to see each other and share in each other's days.
21.Two AMAZING, ridiculous, loving boys to share my life with. Endless smiles and laughs.
22. Two twos. 22nd. Hayden will turn 7 on June 22nd.It is a date that marks a new beginning for me. On that day, I not only became a Mom, but I became a much different person. The adversity we have faced has been challenging and heart-breaking, at times. But, it has made me a far better person. Hayden is someome I admire, greatly. He lives every single day to the fullest and with a smile. I want to be just like him when I grow up. If I ever grow up.
Monday, March 28, 2011
Friday, December 31, 2010
Resolutions Resolved
On this day, the last day of the year, I have heard so much chatter about New Years Resolutions. I really never partake in this ritual. It seems fruitless. I watch others resolve to make changes only to feel a huge sense of failure when they are unable to do so.
Now, I am not perfect. ( I know. This just rocked your world.) I could change a thing or two. So, I guess If I were to make some resolutions they would include the following:
- Be less caddy/gossipy.
- Stop being such an OCD neat freak.
- Drink less ( than an alcoholic).
- Eat breakfast, daily. Decaf coffee is not a meal.
-Allow Rob to do things like fix his bike in the kitchen without freaking out.
- Stop hugging Hayden for ten minutes before he goes to bed each night while driving Rob crazy waiting for the love-fest to end.
- Back off the technology; no more texting while on the house phone and using the ipad.
-Admit that I need help sometimes ( although only from people who know what they are doing and by that I mean people who will do things my way)
- Stop laughing at others.
- Encourage Rob and Hayden to make a mess and clean it up later.
-Shower every Sunday. ( What???? Stop judging.)
- Cheer on a winning NFL team.
- Accept things that are not in my control.
There. These are things I could resolve to change. But, looking at this list, well, I'd just plain suck. I'd be a laid back, sober, girl, who doesn't gossip, is always clean, kind to others and cheering on a team like ( gulp) The Ravens. UGH.
No thanks. I resolve to continue being a sarcastic,chatty, uptight, loving person who cheers on the Redskins ( I'm loyal, too!)while chugging a beer at a MD tailagate and kissing and hugging Hayden as often and as long as he will let me. Eventually, it will seem wrong...like when he is 20?
I hope to continue to be me. Love me or leave me ( Not you , Rob. No leaving.)
Now, who wants to vacum... I sense crumbs.
Happy and healthy 2011 to all.
Now, I am not perfect. ( I know. This just rocked your world.) I could change a thing or two. So, I guess If I were to make some resolutions they would include the following:
- Be less caddy/gossipy.
- Stop being such an OCD neat freak.
- Drink less ( than an alcoholic).
- Eat breakfast, daily. Decaf coffee is not a meal.
-Allow Rob to do things like fix his bike in the kitchen without freaking out.
- Stop hugging Hayden for ten minutes before he goes to bed each night while driving Rob crazy waiting for the love-fest to end.
- Back off the technology; no more texting while on the house phone and using the ipad.
-Admit that I need help sometimes ( although only from people who know what they are doing and by that I mean people who will do things my way)
- Stop laughing at others.
- Encourage Rob and Hayden to make a mess and clean it up later.
-Shower every Sunday. ( What???? Stop judging.)
- Cheer on a winning NFL team.
- Accept things that are not in my control.
There. These are things I could resolve to change. But, looking at this list, well, I'd just plain suck. I'd be a laid back, sober, girl, who doesn't gossip, is always clean, kind to others and cheering on a team like ( gulp) The Ravens. UGH.
No thanks. I resolve to continue being a sarcastic,chatty, uptight, loving person who cheers on the Redskins ( I'm loyal, too!)while chugging a beer at a MD tailagate and kissing and hugging Hayden as often and as long as he will let me. Eventually, it will seem wrong...like when he is 20?
I hope to continue to be me. Love me or leave me ( Not you , Rob. No leaving.)
Now, who wants to vacum... I sense crumbs.
Happy and healthy 2011 to all.
Wednesday, October 20, 2010
Book Drive
Book Drive
Sponsored by Hayden’s Heart Heroes in partnership with The Shea-Smith Chapter of the National English Honor Society to benefit The Johns Hopkins Children’s Center.
Now through November 12, 2010, we will be collecting new books for children who are inpatient at The Johns Hopkins Children’s Center. Hospital stays can be lengthy and difficult. A good book is a great way for a child to escape into the world of literature, for just a bit.
Please consider donating a new book (or more than one) for a child ages infant through eighteen.
Donations may be dropped off or mailed to:
· 1719 Canal Run Drive, Point of Rocks, MD 21777
· Frederick High School
· Ali/Rob Lazorchak can meet you somewhere. (Email Alilaz@aol.com to arrange pick up)
· In the Baltimore area, contact Jeffrey Silverman, tenor4th@comcast.net ,to coordinate drop-off/pick -up.
Please help us put a book in the hands of every child in the hospital.
Thank you for your support.
Sponsored by Hayden’s Heart Heroes in partnership with The Shea-Smith Chapter of the National English Honor Society to benefit The Johns Hopkins Children’s Center.
Now through November 12, 2010, we will be collecting new books for children who are inpatient at The Johns Hopkins Children’s Center. Hospital stays can be lengthy and difficult. A good book is a great way for a child to escape into the world of literature, for just a bit.
Please consider donating a new book (or more than one) for a child ages infant through eighteen.
Donations may be dropped off or mailed to:
· 1719 Canal Run Drive, Point of Rocks, MD 21777
· Frederick High School
· Ali/Rob Lazorchak can meet you somewhere. (Email Alilaz@aol.com to arrange pick up)
· In the Baltimore area, contact Jeffrey Silverman, tenor4th@comcast.net ,to coordinate drop-off/pick -up.
Please help us put a book in the hands of every child in the hospital.
Thank you for your support.
Saturday, August 28, 2010
Why Do We Need to Grow Up?
Hayden began Kindergarten this week and ever since I caught a gilmpse of his classroom, I have been wondering why we need to grow up? I guess I am more curious about why we are expected to be SO boring. I am not a boring person. As a matter if fact, I am quite exciting; some might say fascinating. But, because I am a " grown up" , I am expected to be boring.
I teach high school students and even they do not get to have that much fun. I do not see why we can't have circle time or sit around cracking up over the word underwear. Some underwear is very funny; ie. 3xl thong ( Picture it. On a hairy dude. Funny, right?) Really I just want a huge, brightly colored rug. There is one in Hayden's classroom and frankly, I want it. I want to put it in my classroom and dance on it ( Yesterday, I did twirl in a circle until a student could come up with an answer..I got relly dizzy, but it worked). Or use it to put my kids in groups. They would love it. They could still learn curriculum AND enjoy themselves.I know they enjoy my self-penned " Cheating Song", as well as my singing voice:-)
And snack time. Who does not love a snack? Who does not NEED a snack come mid-afternoon? We should all get snack time. A few Teddygrahams and a drink. Some fruit snacks. Perhaps some pretzels. I think it would make a few people I know a bit less grumpy. Afterall, one cannot function if their belly is rumbling. Some of my students eat at 10:36 ( yes, 36) in the morning. Of course they are starving my the time they reach me at the end of the day. I think that is why that boy ate all of the wood off his pencil yesterday.
Let's talk recess. Persnally, I need recess. I'd like to play jacks. Or, better yet, CHINESE jacks. Some days, I could use dodge ball. There are a few people I'd love to chuck a ball at ( their heads). Picture everyone you work with going outside to play for 30 minutes. It would be fabulous.
Most importantly, I want a bathroom in my classroom. This is a serious matter. As an avid water drinker, I frequently need use the bathroom. As a teacher, this doesn't work. If I leave my kids unattened they might start having sex ( ok, so they have grown up a bit.) I have to wait until class exchanges or lunch to go. Yesterday, I made the mad dash to the pot-tay at least 5 times, Each was a close call. Look, I am coming off of summer and have what is known an an untrained bladder. All summer long, I could go as I pleased, I went willy-nilly whenever I felt the urge ( pun intened). Now, because I am a grown up, I have to wait. And wait. If I had a bathroom in my room, things would go so much better...for me and my bladder.
Mostly, I just think we need to be able to laugh, alot. So, as my favorite six year old would say, "Pineapple, Underpants, Poopy, Poopy. HAHAHA".
I teach high school students and even they do not get to have that much fun. I do not see why we can't have circle time or sit around cracking up over the word underwear. Some underwear is very funny; ie. 3xl thong ( Picture it. On a hairy dude. Funny, right?) Really I just want a huge, brightly colored rug. There is one in Hayden's classroom and frankly, I want it. I want to put it in my classroom and dance on it ( Yesterday, I did twirl in a circle until a student could come up with an answer..I got relly dizzy, but it worked). Or use it to put my kids in groups. They would love it. They could still learn curriculum AND enjoy themselves.I know they enjoy my self-penned " Cheating Song", as well as my singing voice:-)
And snack time. Who does not love a snack? Who does not NEED a snack come mid-afternoon? We should all get snack time. A few Teddygrahams and a drink. Some fruit snacks. Perhaps some pretzels. I think it would make a few people I know a bit less grumpy. Afterall, one cannot function if their belly is rumbling. Some of my students eat at 10:36 ( yes, 36) in the morning. Of course they are starving my the time they reach me at the end of the day. I think that is why that boy ate all of the wood off his pencil yesterday.
Let's talk recess. Persnally, I need recess. I'd like to play jacks. Or, better yet, CHINESE jacks. Some days, I could use dodge ball. There are a few people I'd love to chuck a ball at ( their heads). Picture everyone you work with going outside to play for 30 minutes. It would be fabulous.
Most importantly, I want a bathroom in my classroom. This is a serious matter. As an avid water drinker, I frequently need use the bathroom. As a teacher, this doesn't work. If I leave my kids unattened they might start having sex ( ok, so they have grown up a bit.) I have to wait until class exchanges or lunch to go. Yesterday, I made the mad dash to the pot-tay at least 5 times, Each was a close call. Look, I am coming off of summer and have what is known an an untrained bladder. All summer long, I could go as I pleased, I went willy-nilly whenever I felt the urge ( pun intened). Now, because I am a grown up, I have to wait. And wait. If I had a bathroom in my room, things would go so much better...for me and my bladder.
Mostly, I just think we need to be able to laugh, alot. So, as my favorite six year old would say, "Pineapple, Underpants, Poopy, Poopy. HAHAHA".
Friday, August 20, 2010
One Down
Everyone keeps asking me if I am ready for Hayden to go to Kindergarten. The answer, umm, YES! It means he is a cool six year old. Long gone are the baby abd toddler days that I did not really love, or like, at all. I love " big " kids. Not so much little kids.
People seem to expect me to be emotional and nostalgic. " Aww, my baby is so big" kind of crap. That really isn't me. I want him to go out in the world, be kind to others, laugh, and perhaps learn a few things. ( other than the sarcasm I am teaching him at home).
I will say that this is a milestone for us. Right after Hayden was born, one of my best friends sent me a quiz. It was one of the copy and paste quizzes that you send on to your friends. The point was to reveal things about yourself that your friends might not know. One of the questions was, " I'd like to see...". Most people entered exotic locales and fabulous travel destinations. My response came quite easily to me and I immediately typed, " Hayden go to Kindergarten, Hayden's Bar Mitzvah, Hayden graduate and Hayden get married." At the time, those were things I wanted for him, but was not really sure we'd see. Oddly, I have remembered that quiz over the years and can't help but think of it, again, as he approaches the start of school. For us this is a milestone. We fought, hard, to get here. Hayden leading the fight all the way. Amazing as always.
So, one milestone down, three to go. I hope to type this same blog entry seven years from now on the eve of his Bar Mitzvah. I also hope that I have a great dress to wear. Oh, and fabulous shoes.
People seem to expect me to be emotional and nostalgic. " Aww, my baby is so big" kind of crap. That really isn't me. I want him to go out in the world, be kind to others, laugh, and perhaps learn a few things. ( other than the sarcasm I am teaching him at home).
I will say that this is a milestone for us. Right after Hayden was born, one of my best friends sent me a quiz. It was one of the copy and paste quizzes that you send on to your friends. The point was to reveal things about yourself that your friends might not know. One of the questions was, " I'd like to see...". Most people entered exotic locales and fabulous travel destinations. My response came quite easily to me and I immediately typed, " Hayden go to Kindergarten, Hayden's Bar Mitzvah, Hayden graduate and Hayden get married." At the time, those were things I wanted for him, but was not really sure we'd see. Oddly, I have remembered that quiz over the years and can't help but think of it, again, as he approaches the start of school. For us this is a milestone. We fought, hard, to get here. Hayden leading the fight all the way. Amazing as always.
So, one milestone down, three to go. I hope to type this same blog entry seven years from now on the eve of his Bar Mitzvah. I also hope that I have a great dress to wear. Oh, and fabulous shoes.
Sunday, May 9, 2010
Only Your Mom
There are some things that only your Mom will do for you. Occasionally, they might seem embarassing or mean, but keep in mind that we do these things " for your own good". I forsee that I will have many more of these moments as Hayden gets older, but I have had quite a few thus far.
Only your mom...
will give you a big, wet, morning kiss and promptly tell you that you have stinky breath.
will tell you that socks with Crocs looks ridiculous, but to do what you want ( only to smile when you swiftly remove the socks in question).
will alert you to the giant chunk of poop on your leg.
will carry Purell, Wet Ones, Cottonelle Wipes, Band Aids, Ice Packs, Sunscreen and bottled water...just in case.
will tell you not to suck on your own toes just because you can.
will kiss you when you have garlic breath, a chocolate mouth or a runny nose.
will tell you to get out of the room until you can act right.
can make you laugh while you are crying.
will pull a booger out of your nose.
will carry BBQ sauce in her purse for you.
will let your dad look in your ears with a flshlight and binoculars.
can convince you to eat things by telling you they taste just like raisins.
will drink after you.
will tell you your shirt is too small.
thinks it is funny when you kick your underwear across the bathroom because you ike to " go" naked.
listens, without panicking, when you say that you, your wife and four children plan to live with her forver, and ever.
understands that some chicken is too stringy to eat.
thinks your guitar playing is wonderful and does not, at all sound like you are killing a cat.
will kiss your feet.
will giggle with you when your Dad is mad at us.
loves to watch you sleep.
makes you vacum after every snack.
will tell you that cartoon character clothing is not something we wear.
will clean your fish's bowl, even though she did not want the fish or approve of the fish. ( and let you name him Lucky Ball...like on old man with one testicle.)
will give you the last Mallow cup.
feeds you Gelato cause that's how we roll.
will snuggle with you for hours.
loves to hear you babble and babble and babble on about nothing for hours on end.
talks like The French lady while trimming your nails.
thinks you are a HUGE weirdo, but loves you for it.
Only your mom...
will give you a big, wet, morning kiss and promptly tell you that you have stinky breath.
will tell you that socks with Crocs looks ridiculous, but to do what you want ( only to smile when you swiftly remove the socks in question).
will alert you to the giant chunk of poop on your leg.
will carry Purell, Wet Ones, Cottonelle Wipes, Band Aids, Ice Packs, Sunscreen and bottled water...just in case.
will tell you not to suck on your own toes just because you can.
will kiss you when you have garlic breath, a chocolate mouth or a runny nose.
will tell you to get out of the room until you can act right.
can make you laugh while you are crying.
will pull a booger out of your nose.
will carry BBQ sauce in her purse for you.
will let your dad look in your ears with a flshlight and binoculars.
can convince you to eat things by telling you they taste just like raisins.
will drink after you.
will tell you your shirt is too small.
thinks it is funny when you kick your underwear across the bathroom because you ike to " go" naked.
listens, without panicking, when you say that you, your wife and four children plan to live with her forver, and ever.
understands that some chicken is too stringy to eat.
thinks your guitar playing is wonderful and does not, at all sound like you are killing a cat.
will kiss your feet.
will giggle with you when your Dad is mad at us.
loves to watch you sleep.
makes you vacum after every snack.
will tell you that cartoon character clothing is not something we wear.
will clean your fish's bowl, even though she did not want the fish or approve of the fish. ( and let you name him Lucky Ball...like on old man with one testicle.)
will give you the last Mallow cup.
feeds you Gelato cause that's how we roll.
will snuggle with you for hours.
loves to hear you babble and babble and babble on about nothing for hours on end.
talks like The French lady while trimming your nails.
thinks you are a HUGE weirdo, but loves you for it.
Friday, April 2, 2010
36 Things
A year ago at this time, Hayden was in the hospital for 36 days ( feel read to read the older posts from that time period). So, here are 36 things we are thankful for.
1. Dr. Duke Cameron. While Rob admires your hands, literally ( he claims they are incedibly soft, but we can discuss Rob's issues later),I admire the work you do with those hands. As a pediatric cardiac surgeon you are simply amazing.Saving lives, working gracefully under pressure and always offering calm sand reassurig words.
2. Dr. Luca Vricella. Simply awesome. Thank you for placing your black voodoo box on Hayden's bed. You believed in Hayden and you valued and respected our opinion, even on the hard decisions.Always took the time to let me look at a film or results and throw out my take on things.
3. Dr. Joel Brenner. Our sounding board, guide, advisor and dear friend. You have been through it all with us and always stand by us. You are willing to have the tough conversations and truly hear our side. Our opionion is always part of your equation. Hayden adores you. Plus, you get my sarcasm and never judge me for it... I think. You may never, ever retire ;-)
4.PICU Nurses. OK, you are the most amazing people, EVER. The things you see, do,deal with each day...unthinkable. You guys not only took care of Hayden but Rob and I as well. Some of you even came out of it as our friends:-) So, I am gonna be specific here. Thanks to the following nurses who took care of Hayden ( yes, I kept track in my little notebook): Keri, Adrienne, DVP, Vanessa, Serenity, Jacqui, Candace, Katie, Chris, Maureen, Erin, Mary, Melisa, Consuela, Julie, Michael, Dana, Cynthia, Laceter, Jenn, Megan Sha., Christina, Nikki, Amy, Dawn, the other Megan, Michelle,Missy, Pam.
5.PICU Attendings and Fellows. You guys were with us round the clock dealing with every little hiccup. You work tirelessly.
6. PICU RT Team. Thank you. Intubated vs. extubated is the least fun game to play. Throw in BiPap and respiratory distress and it becomes and even less fun game. You worked with us and to keep Hayden safe, but also to get him breathing on his own.
7.Pediatrc Cardiology Team. There are so many of you who are so important to us. We trust you, your intuition and knowledge. You guided us and shared with us. We would recommend you to anyone.
8. Dr. Holmes. Yep, a shout out just for you. For me,ersonally, you were an amazing sounding board. You listened to me and my instincts, spent time explaining specific medical issues and shared a very human side of yourself. You shared tears with me and a good deal of laughter. You fought for my kid ( and rammed the bed of a girk who has just returned from a SPINAL FUSION!!!!) and I am forever grateful.
9.Child Life. Making the hospital normal. What an oxymoron! But, you guys do it. Child Life Liz, you are amazing. You job is incredibke hard. The PICU is not normal...at all. You work tirelessly to make the kids content, even happy. You have compassion for famiies and their adverse situations.
10. Grammy and Pop, aka.Mom and Dad. You took us in, fed us, did laundry, cared for our fish and pretty much did anything we needed. You made an Easter basket for Rob so that he would have an Easter. You drove to our house to pick up my checkbook. You sat with us, everyday, at Hayden's bedside. You made Hayden laugh. You fielded phone calls, supported us, listen to us. You are simply amazing .We love you.
11. Betsy. Words cannot express how much your friendship means to me. You listened and shared in our chalenges and successes. You knew everything and I know that was a burden, but you kept it together when you talked to me and reminded me that we were making good decisions for the right reasons.You are a constant reminder that family has nothing to do with blood. ( I guess that is why Hayden says you are like his Aunt and John is like his Uncle...but Maggie is his sister? Hmmm)Big, wet kisses.
12.Amazing Friends who visited us,cared for us, loved us. Robyn, Kelly, Bush's, Jon. It is not easy to visit a child in the PICU but you have no idea how much your visits meant to us. Having someone to sit and eat lunch with or chat in a waitingroom with was so important.
13.Kevin and Jenn. You guys rock. You visted, fed and spent time with us. You brought Rob Easter Dinner. You checked in on Hayden constantly. He is so fortunate to have such an amazing Aunt and Uncle.WE love you guys!
14.Grandma and Pop-Pop. That drive isn't a short one, is it? Thank you for coming down to see us and for supporting us.
15. Grammie and Papou. You are amazing. Talking to you is always grounding. Your visits were a respite for both Hayden and I. You were among the few that he would stay with. He LOVED listening to Papou read to him. He loved spending time with both of you. How lucky are we to have you as grandparent set #3!
16. Canal Run Bunco/Drunko. The best friends and neighbors we coukd ever ask for. Mowing, moving our furniture ( in and out) and giving us wine juice boxes...awesome. Thank you for always checking on us and sharing our story with so many others. A BIG thanks for the welcome home girl's night. It was much needed and so fun. I love a boa:-)
17. All of you who checked in via e-mail/phone on a regular basis. Teresa, Jamie, Cathy, Karen, Mel,Debbie, Lynn,Kim, Chrisse, Cass,Dayna,The Durkins, Leener. It is so hard to be away from the real world for so long. It is nice to know that the outside worlds still exists. It is awkward to reach out to those in an adverse situation and you did just that. Hugs!
18. Rob's support system. Ken, Chris Ma, Chris Mu,Dave, Bush. You guys have no idea what your phone calls and conversations meant to Rob. You gave him someone to talk to ( besides me!) and provided great distraction.
19. FHS friends. You are always so loving and supportive. I work with some amazing people. I cannot name all of you, but your generosity, prayers and love have meant so much to us.
20. Cathy and Kelly. Who else would grade essays for me? Love you both.
21.Beth Sholom. Teachers, friends, families. Hayden receiveed so much love, prayers, support from so many of you. Great video clips sent to cheer him up. A Miss Beth visit once we came home. Check in e-mails from Margie. You are all wonderful.
22. Timber Grove Elem. You guys have always done so much for us. Thank you for feeding us. Thank you for thinking of us. Thank you for taking care of my mom.
23. Isabella. For being Hayden's " girlfriend", sending him art work ( that he had us hang up)and being the first person he wanted to call once he got to a room.
24.Debbie. That you for always checkiing in and sending prayers,. Your goodie bags are always appreciated. You have been there and you get it.
25. Aunt Iris and Uncle Leon. Thank you for providing us with so much support and giving my parents support as well.
26.Aunt Mrya and Uncle Harv. You are always there to chat and to feed us. Just what we needed.
27. Doovie. Thank you for always thinking of us and calling. Thank you for the AMAZING support for the tournament and our fundraising efforts.
28.Rob. I am thankful for you, everyday. You are an amazing man. As a husband, you support me, love me and put up with my " quirks". We have been through so much more than we wanted to go through, but have always come out stronger. Your devotion to me and our family of three is evident in all of your actions. As a father, you are the best. You are incredible with Hayden. You took the night shift; that says it all. He adores you and every minute that you spend together. I love you more than my fingers can type.
30. Hayden. Hayd, Dad and I love you more than anything. More than the moon, the stars and the light? You are the toughest, bravest, strongest, most resilient boy I know. Your laugh makes me smile. Your smile makes me smile. Your silly, ridiculous personality, makes me smile. I never imagined that I;d fall in love this way. Everyday with you is a gift that we cherish.
31.Laughter. It cures what ails you. If it weren't for laughing, I'd have to cry and that is way less fun.
32. A deeper appreciation for life and what is important. Most importantly,time spent together. Playing Candyland. Watching a movie. Dancing. Gardening. Cooking.Snuggling.Vacationing. Arguing. Reading. Vacuming. Thankful for all of it. Each moment is more precious than the next .I am thankful that I have been given the opportunity to appreciate people, moments and time.
33.Wine, Vodka, Beer, Moonshine, etc. I know, it doesn't seem appropriate, but, well, it sure helps:-)
34.The kindness of strangers. Thank you. So many people reached out to us and many of them were complete strangers. It reminded me that the world is not a bad plavce and that people are good. I challenge you do to something kind for someone you do not know, they will appreciate it.
35.Thoughts and prayers. They are might powerful.
36. All of you. If you are reading this, you are important to us, You have shared in our story, shared our story with other and become an important part of our lives.
And one for good luck... Research, funding and medical advancements .
1. Dr. Duke Cameron. While Rob admires your hands, literally ( he claims they are incedibly soft, but we can discuss Rob's issues later),I admire the work you do with those hands. As a pediatric cardiac surgeon you are simply amazing.Saving lives, working gracefully under pressure and always offering calm sand reassurig words.
2. Dr. Luca Vricella. Simply awesome. Thank you for placing your black voodoo box on Hayden's bed. You believed in Hayden and you valued and respected our opinion, even on the hard decisions.Always took the time to let me look at a film or results and throw out my take on things.
3. Dr. Joel Brenner. Our sounding board, guide, advisor and dear friend. You have been through it all with us and always stand by us. You are willing to have the tough conversations and truly hear our side. Our opionion is always part of your equation. Hayden adores you. Plus, you get my sarcasm and never judge me for it... I think. You may never, ever retire ;-)
4.PICU Nurses. OK, you are the most amazing people, EVER. The things you see, do,deal with each day...unthinkable. You guys not only took care of Hayden but Rob and I as well. Some of you even came out of it as our friends:-) So, I am gonna be specific here. Thanks to the following nurses who took care of Hayden ( yes, I kept track in my little notebook): Keri, Adrienne, DVP, Vanessa, Serenity, Jacqui, Candace, Katie, Chris, Maureen, Erin, Mary, Melisa, Consuela, Julie, Michael, Dana, Cynthia, Laceter, Jenn, Megan Sha., Christina, Nikki, Amy, Dawn, the other Megan, Michelle,Missy, Pam.
5.PICU Attendings and Fellows. You guys were with us round the clock dealing with every little hiccup. You work tirelessly.
6. PICU RT Team. Thank you. Intubated vs. extubated is the least fun game to play. Throw in BiPap and respiratory distress and it becomes and even less fun game. You worked with us and to keep Hayden safe, but also to get him breathing on his own.
7.Pediatrc Cardiology Team. There are so many of you who are so important to us. We trust you, your intuition and knowledge. You guided us and shared with us. We would recommend you to anyone.
8. Dr. Holmes. Yep, a shout out just for you. For me,ersonally, you were an amazing sounding board. You listened to me and my instincts, spent time explaining specific medical issues and shared a very human side of yourself. You shared tears with me and a good deal of laughter. You fought for my kid ( and rammed the bed of a girk who has just returned from a SPINAL FUSION!!!!) and I am forever grateful.
9.Child Life. Making the hospital normal. What an oxymoron! But, you guys do it. Child Life Liz, you are amazing. You job is incredibke hard. The PICU is not normal...at all. You work tirelessly to make the kids content, even happy. You have compassion for famiies and their adverse situations.
10. Grammy and Pop, aka.Mom and Dad. You took us in, fed us, did laundry, cared for our fish and pretty much did anything we needed. You made an Easter basket for Rob so that he would have an Easter. You drove to our house to pick up my checkbook. You sat with us, everyday, at Hayden's bedside. You made Hayden laugh. You fielded phone calls, supported us, listen to us. You are simply amazing .We love you.
11. Betsy. Words cannot express how much your friendship means to me. You listened and shared in our chalenges and successes. You knew everything and I know that was a burden, but you kept it together when you talked to me and reminded me that we were making good decisions for the right reasons.You are a constant reminder that family has nothing to do with blood. ( I guess that is why Hayden says you are like his Aunt and John is like his Uncle...but Maggie is his sister? Hmmm)Big, wet kisses.
12.Amazing Friends who visited us,cared for us, loved us. Robyn, Kelly, Bush's, Jon. It is not easy to visit a child in the PICU but you have no idea how much your visits meant to us. Having someone to sit and eat lunch with or chat in a waitingroom with was so important.
13.Kevin and Jenn. You guys rock. You visted, fed and spent time with us. You brought Rob Easter Dinner. You checked in on Hayden constantly. He is so fortunate to have such an amazing Aunt and Uncle.WE love you guys!
14.Grandma and Pop-Pop. That drive isn't a short one, is it? Thank you for coming down to see us and for supporting us.
15. Grammie and Papou. You are amazing. Talking to you is always grounding. Your visits were a respite for both Hayden and I. You were among the few that he would stay with. He LOVED listening to Papou read to him. He loved spending time with both of you. How lucky are we to have you as grandparent set #3!
16. Canal Run Bunco/Drunko. The best friends and neighbors we coukd ever ask for. Mowing, moving our furniture ( in and out) and giving us wine juice boxes...awesome. Thank you for always checking on us and sharing our story with so many others. A BIG thanks for the welcome home girl's night. It was much needed and so fun. I love a boa:-)
17. All of you who checked in via e-mail/phone on a regular basis. Teresa, Jamie, Cathy, Karen, Mel,Debbie, Lynn,Kim, Chrisse, Cass,Dayna,The Durkins, Leener. It is so hard to be away from the real world for so long. It is nice to know that the outside worlds still exists. It is awkward to reach out to those in an adverse situation and you did just that. Hugs!
18. Rob's support system. Ken, Chris Ma, Chris Mu,Dave, Bush. You guys have no idea what your phone calls and conversations meant to Rob. You gave him someone to talk to ( besides me!) and provided great distraction.
19. FHS friends. You are always so loving and supportive. I work with some amazing people. I cannot name all of you, but your generosity, prayers and love have meant so much to us.
20. Cathy and Kelly. Who else would grade essays for me? Love you both.
21.Beth Sholom. Teachers, friends, families. Hayden receiveed so much love, prayers, support from so many of you. Great video clips sent to cheer him up. A Miss Beth visit once we came home. Check in e-mails from Margie. You are all wonderful.
22. Timber Grove Elem. You guys have always done so much for us. Thank you for feeding us. Thank you for thinking of us. Thank you for taking care of my mom.
23. Isabella. For being Hayden's " girlfriend", sending him art work ( that he had us hang up)and being the first person he wanted to call once he got to a room.
24.Debbie. That you for always checkiing in and sending prayers,. Your goodie bags are always appreciated. You have been there and you get it.
25. Aunt Iris and Uncle Leon. Thank you for providing us with so much support and giving my parents support as well.
26.Aunt Mrya and Uncle Harv. You are always there to chat and to feed us. Just what we needed.
27. Doovie. Thank you for always thinking of us and calling. Thank you for the AMAZING support for the tournament and our fundraising efforts.
28.Rob. I am thankful for you, everyday. You are an amazing man. As a husband, you support me, love me and put up with my " quirks". We have been through so much more than we wanted to go through, but have always come out stronger. Your devotion to me and our family of three is evident in all of your actions. As a father, you are the best. You are incredible with Hayden. You took the night shift; that says it all. He adores you and every minute that you spend together. I love you more than my fingers can type.
30. Hayden. Hayd, Dad and I love you more than anything. More than the moon, the stars and the light? You are the toughest, bravest, strongest, most resilient boy I know. Your laugh makes me smile. Your smile makes me smile. Your silly, ridiculous personality, makes me smile. I never imagined that I;d fall in love this way. Everyday with you is a gift that we cherish.
31.Laughter. It cures what ails you. If it weren't for laughing, I'd have to cry and that is way less fun.
32. A deeper appreciation for life and what is important. Most importantly,time spent together. Playing Candyland. Watching a movie. Dancing. Gardening. Cooking.Snuggling.Vacationing. Arguing. Reading. Vacuming. Thankful for all of it. Each moment is more precious than the next .I am thankful that I have been given the opportunity to appreciate people, moments and time.
33.Wine, Vodka, Beer, Moonshine, etc. I know, it doesn't seem appropriate, but, well, it sure helps:-)
34.The kindness of strangers. Thank you. So many people reached out to us and many of them were complete strangers. It reminded me that the world is not a bad plavce and that people are good. I challenge you do to something kind for someone you do not know, they will appreciate it.
35.Thoughts and prayers. They are might powerful.
36. All of you. If you are reading this, you are important to us, You have shared in our story, shared our story with other and become an important part of our lives.
And one for good luck... Research, funding and medical advancements .
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