Day 7; but he peed in a urinal

We were so excited. We got here this morning and Hayden interacted with us. They stopped his sedation and were getting prepared to extubate him. He even peed in a urinal. He was mouthing things around the breathing tube.( like, " yes, I have to go potty"). They even removed his last chest drainage tube. But, just as we were moving to extubation they realized that his airway is inflamed from being intubated for so long.This can be a problem following extubation because it could, potentially, make it more difficult for him to breath. If that happened, he'd get re-intubated and stay that way for days. ( BAD!!!!) Sooooooooo, they startted a steroid to reduce the inflamation. This should work within 24 hours. Because he will remaim intubated until tomorrow, they turned back on his sedative.No more interacting.
We are glad that they are being cautious. It isn't worth the risk, but it is disheartening. Naturally, we want progress, but mostky we were both looking forward to interacting with Hayden, today.
So we went from peeing in a urinal to being knocked out, again.
All else is quiet. Quiet is good. Just a long day.
We had to leave at 7 last night. A baby came in an needed ECMO and they cleared the room until after ten.We went to dinner like real people.
Sorry, nothing witty to say today...