Day 25; Don't come a knockin' when this heads a rockin'

This will be short. I have a rockin' migraine. The kind where you need to ice your head and curl up in a cold, dark cave. Instead I will go sit under the flourescents at Hopkins. That'll make it better.
Hayden's cath. was a fact finding expedition. We were able to confirm that his cardiac function isn't very good. The doctors were able to formulate a medical ( as opposed to surgical) plan. Something to try; no promises. They will be trying a number of things to attempt to improve function. ( medicine, blood, etc.) Most importantly, they think the heart needs some time. We are proceeding cautiously, but hopefully.
We may have been unclear in previous posts. Some of you are under the impression that Hayden is doing very well. He is coming along well, socially, but physically, he remains in quite critical condition- back to that whole heart function thing.
Also, many of you have inquired about visiting. Truthfully, we are attempting to avoid exposing h to a zillion people. Less people, less germ exposure. Also, PICU is an unpleasant place to visit- not for those with a weak stomach. ( A visiting physical therapy student ran out of our room to vomit on Tuesday). Children under 16 are not permitted in the Children's center. If you are inclined to see us, drop us mail or call and we can work it out...meet you downstairs for a meal and have you pop up to say hi to H. He doesn't really like it when Rob and I do not give him our full attention:-) Butm we can try to work it out.
Please keep praying for Hayden.