Hayden is on a TON of diuretics in order to keep fluid down. While the fluid has come off, so have some important things like potassium and sodium. We have been replacing the potassium with a nasty supplement. Apparently, the sodium supplemet is not only nasty, but a tremendos volume, 3 X a day. As opposed to torturing him with that, they decided to have him eat extra salt. We were brought a huge bag of salt pckets and told to put salt everything. Example; Crab Chips;poured salt on them, Salt and Vinegar Chips; poured salt on them, chicken; poured salt on it. Really gross. I am sure in two days they will tell us he needs a low salt diet.
Aside from eating massive quantities of salt, Hayden had a great day. His antibiotic course ended- white blood cell count down, at 5,000, he is taking amost all meds. orally, he is on the second to lowest dose of narcotics and will be weened off totally within a week, his saturations are in the upper 80's and lower 90's, he walked really far, they started the paper work to order us a machine to test his INR ( cumadin blood level) at home- don;tr freak- it isn't a big dea ( he'll be on blood thinners forever) AND they started to transition him from the IV med,. that is only given in the PICU to the oral version- this will take a bit to complete- they go down on the IV version and gradually go up on the oral.
He worked really hard in PT and is definitely getting stronger. He wore himself out and slept through most of pop's visit ( AGAIN) and all of Jon's visit ( thanks for coming, it was great to see you!)He had also gotten up for the day at 4:45 am...
I did the dash to POR last night. My house was hot as ...well, you know. I sorted through the mail; mostly junk, grabbed a checkbook, stamps and some summer clothes. Trac and Mel, thanks for the goody bag. Juice boxes of wine totally ROCK!!!!! An alocoholics dream...someone was really thinking.
Hayden's class made him a video- I am so excited for him to recieve it, I know he will be thrilled! ( Thanks Shannon- great idea!)
We had much peace and quiet without a roomate;-)
Looking forward to another quiet day and a visit from Uncle K-dog and Aunt Jenn.
Stay away from the pig farm...
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6 comments:
I will be working on the video today. There are a lot of people at Beth Sholom that are in awe of Hayden and that miss him terribly. I am working on finding an online service to broadcast it over. Stay strong.
Shannon
We continue reading the blogs and updating Ken and Jill. We all still pray for him. We are glad that progress is being made and understand that it will be a long time for Hayden to get back to the levels he was before, but it sounds as if strives are being made. Your dad keeps us updated with pictures and we save them all. Looking forward to seeing more as Hayden gets stronger and back home as soon as possibe.
Love to you all,
Arnold and Jae
A few words need to be said about Shiny Tail. He is thriving in Grammy's bedroom. Grammy changes his water (bottled), cleans his fake trees, puts the two drops in, and feeds him. He loves Grammy and knows her voice. His little fins start to flap when she walks over to his bowl and talks to him.
great to read about h's progress. we'll continue to check-in and love reading your blogs. take care - the simon's
Thank goodness Hayden has been having better days....thanks for keeping up your blog.
Mark and Gail
I have to say Grammy sounds awesome! Lucky Shiny Tail!
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