Since its 4:00 am and I already worked, took a nap and a walk, I figure I would give this post thing another go at it. Sure Ali will post her daily note too.
Hayden is having a great night. Over the last week we have developed a nightly routine to pass the time. 8 to 9 take a bed bath, get weighed, take our last batch of meds, turn on the NBA playoffs (NBA is painful to watch, but it is really helpful to pass the time.) Than we pick out a snack tonight was sun chips. and than we figure out a new game to play for the night. Tonight was Nintendo Game cube (kicken ol school) ,before it was UNO, Game boy and Leapster. he feel asleep around 11:00. Should be up around 6 for the morning so I get an hour to hang with him before heading out at 7.
His nightly lab results, saturation (o2s) and blood pressure are all looking good for tonight. plan is to increase his captiprol with his morning dose so hopefully that goes well today.
To watch Hayden's progress the last week has been amazing. This kid is truly a gift and one heck of a fighter. We still have a bit to go, but to watch him smile, laugh, play games, walk a little more each day is one of the most amazing things I think I have ever seen. Praying that he keeps making great strides, so we can get closer to heading home.
During all of this Ali has been amazing, can't believe how well she deals with the doctors, nurses during the day. Guess Hayden and I owe her one hell of a mother day gift. ;) hmmm have to come up with something, Hayden and I talked about it tonight. right now Hayden thinks we should get her a hanging vegetable planter based on a TV commerical we saw. glad we have a little time to come up with plan b;)
Thanks for everyones support, prayers, thoughts etc... during all of this we really appreciate it so much. Now back to surfing the web.... hmmm facebook, ebay, washingtonpost.
6 comments:
If we are patting backs,Rob is also pretty amazing. He gives Hayden a respite from working hard all day; a great distraction, a play buddy.Staying up all night isn't an easy thing to do. As always, the ying to my yang.( I love you bunches, Bertie Bert)
A hanging vegetable planter sounds lovely. Three easy payments of$19.95? Remember, Rob, you have til June- we swapped Mother's Day and Father's Day this year because of a " toy" you were after. ( send me that bike link,please).
Also hoping to keep seeing progress.
Thank you all for following us on the blog. You know how I love an audience.
ok...rob's blog made me tear up and ali's made me laugh. is the bike for the upcoming triathalon. did you three pick out your matching speedos yet, i say make it pink/black zebra stripes. woo-hoo! tell hayden isabella says hi again and she misses him. she has a couple of movies she wants to watch with him.
keep getting better.
miss you guys!
love,
cassandra
Me too! I am crying! You three are ALL amazing!!!! We love you and miss you and only wish we could visit you and give Hayden a HUGE high five.
so glad Aunt Sally told us of this blog so that we can monitor Hayden's progress. I read daily and keep Dad up to date. Happy to read that he is doing better each day-hard to imagine everything he has been thru for such a little guy. God Bless and Stay Strong!
It has been a long haul for Hady and you, but he is one tough oookie. When we saw him this week he seemed so much better than last week. Stronger and more relaxed, except when they wanting him to take the medicine that tasted like sea water. Mommy nixed that and they came up with a different way to get him the sodium he needed. I hope the road to recovery moves along at a steady speed with no more bumps in the road.
Good idea Cass. Except I am thinking more 1 piece wet suit with floaties since we are all so out of shape. ;) I hope Chris and Bush are training a little more than I have been. I ran 2 miles and than went on bike for 5 miles and was done.
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